ten years gone.

It's hard to believe that it has been ten years since I've moved from Austin, TX to Greensboro, NC, this Thanksgiving weekend in 2003.

I had extensive life saving surgery for cumulative years of severe Crohn's disease in December 2002 in Austin, which included four feet of intestines removed, a hole in my bladder repaired, and a fistula repaired. My immune system was completely shot at that point and I was very weakened and susceptible to other difficulties, and it was a domino effect in the worst way. I recovered the best I could but it was not ideal conditions, looking back. 2003 was a hell of a year.

I developed C. diff (Clostridium difficile) from that hospital stay unbeknownst to me, and muddled through work for months wondering if this was how I was supposed to feel. I drove myself to the ER after my ankles swelled up enormously one day and my co-workers feared something heart related, parked in the front, and didn't come out for a week. I also developed a sulfite allergy that summer, and had another trip to the ER as my throat closed up listening to R.E.M. at the 2nd Austin City Limits music festival!

While on disability from work for a month recovering from the C. diff and everything else, I came to stay with my family who had just moved to NC and made trips to Duke, UNC Chapel Hill, Wake Forest, and Johns Hopkins. I was glad I did because at 3 out of 4 places I got new answers to the various befuddling complexities I was dealing with. I discovered I had terrible latex and formaldehyde allergies that were breaking me out all over my body, and I had experienced an allergic reaction to Remicade, which was a newer drug at the time with side effects not being reported by its maker yet because it had been administered to less than 5,000 people.

At that crossroads, I remember weighing the pros and cons of moving from an amazing city that I hadn't really had a chance to fully appreciate or enjoy because I was too ill, to somewhere near my family that had many big medical institutions in close proximity. I was genuinely torn and heartbroken about leaving Austin (considered leaving my stuff in storage there), but ultimately decided to just pack it all up and come here where I had found at least some of my answers.

I had tried everything humanly possible to get well in Austin, but I was too sick ironically for any of it to have a chance at working. Painstakingly slowly, over this past decade in NC, I have had the opportunity to take baby steps towards getting well (two forward and one back), and have built up a dedicated health team army in the process.

As much as I've begrudged being "banished" here from the cool city to get well, incredibly, I do not regret the decision.

Just came across this sorting through files from that move...
photo
11.25.03 - back when photos had printed timestamps...
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Ten Years Gone.
10yrgone

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